Faktor Biososial Kualitas Hidup Pada Anak Cerebral Palsy

Alinda Nur Ramadhani(1*), Dea Linia Romadhoni(2)

(1) Universitas Aisyiyah Surakarta
(2) Universitas 'Aisyiyah Surakarta
(*) Corresponding Author

Abstract

Cerebral Palsy (CP) merupakan salah satu penyebab paling umum dari disabilitas fisik pada masa kanak-kanak. Cerebral palsy sering dikaitkan dengan berbagai masalah muskuloskeletaal, gangguan emosi, perilaku, sensoris, dan kognitif. Berbagai permasalahan ini mungkin berefek negatif terhadap kualitas hidup anak Cerebral palsy. Tujuan dari penelitian ini adalah untuk menganalisis faktor biososial yang berhubungan dengan kualitas hidup anak cerebral palsy. Penelitian ini menggunakan studi analitik observasional dengan pendekatan cross sectional. Sebanyak 110 subyek penelitian diambil menggunakan teknik simple random sampling. Data dikumpulkan dengan menggunakan kuesioner dan dianalisis dengan path analysis. Kualitas hidup anak cerebral palsy berhubungan dengan kemampuan motorik kasar (b=2,79; CI 95%= 1,54 hingga 4,03; p=<0,001), dukungan keluarga (b=1,25; CI 95%= 0,26 hingga 2,24; p=<0,013),  dan dukungan sosial (b=0,99; CI 95%= 0,14 hingga 1,97; p=<0,047). Kesimpulan penelitian ini adalah kualitas hidup anak cerebral palsy berhubungan dengan kemampuan motorik kasar, dukungan keluarga yang kuat dan dukungan sosial yang kuat.

References

Almasri, A., O’Nell M.E., Palisano, R.J. (2013). Predictors of Needs for Families of Children with Cerebral Palsy. Disability and Rehabilitation, 145(2), 1-10.

Badia, M., Begoña Orgaz, M., Gómez-Vela, M., Verdugo, M. A., Ullán, A. M., & Longo, E. (2016). Do environmental barriers affect the parent-reported quality of life of children and adolescents with cerebral palsy? Research in Developmental Disabilities, 49–50(October), 312–321. https://doi.org/10.1016/j.ridd.2015.12.011

Boling, S., Tarja, V., Helena, M., Wivi, F., Ilona, A.R & Leena, H. (2013). Measuring quality of life of Finnish children with Palsi Serebralis. J Pediatr Rehabilit Med, 6: 121-7.

Chen, K. L., Tseng, M. H., Shieh, J. Y., Lu, L., & Huang, C. Y. (2014). Determinants of quality of life in children with cerebral palsy: A comprehensive biopsychosocial approach. Research in Developmental Disabilities, 35(2), 520–528. https://doi.org/10.1016/j.ridd.2013.12.002

Colver, A., Fairhurst, C., & Pharoah, P. O. D. (2014). Cerebral palsy. The Lancet, 383(9924), 1240–1249. https://doi.org/10.1016/S0140-6736(13)61835-8

Colver, A., Rapp, M., Eisemann, N., Ehlinger, V., Thyen, U., Dickinson, H. O., … Arnaud, C. (2015). Self-reported quality of life of adolescents with cerebral palsy: A cross-sectional and longitudinal analysis. The Lancet, 385(9969), 705–716. https://doi.org/10.1016/S0140-6736(14)61229-0

Delacy, M. J., & Reid, S. M. (2016). Profile of associated impairments at age 5 years in Australia by cerebral palsy subtype and Gross Motor Function Classification System level for birth years 1996 to 2005. Developmental Medicine & Child Neurology, 58, 50–56. https://doi.org/10.1111/dmcn.13012

Dickinson, H. O., Parkinson, K. N., Ravens-Sieberer, U., Schirripa, G., Thyen, U., & Arnaud, C. (2007). Self-reported quality of life of 8-12-year-old children with cerebral palsy: a multi-centre cross-sectional European Study. Lancet, 369(9580), 2171–2178.

Harumi, L., Pamungkasari, E.P., Murti, B. (2017). Effectiveness of Practical Integrative Modul in Empowering Family of Children With Cerebral Palsy. Journal of Health Promotion and Behaviour, 2(2): 174-183. https://doi.org/10.26911/thejhpb.2017.02.02.07

Jeffries, L., Fiss, A., McCoy, S. W., & Bartlett, D. J. (2016). Description of Primary and Secondary Impairments in Young Children With Cerebral Palsy. Pediatric Physical Therapy, 28(1), 7–14. https://doi.org/10.1097/PEP.0000000000000221

Mei, C., Reilly, S., Reddinhough, D., Mensah, F., Green, J., Pennington, L., Morgan, A.T. (2015). Activities and participation of children with cerebral palsy: parent perspectives. Disability and Rehabilitation, 37:23, 2164-2173. https://doi.org/10.3109/09638288.2014.999164

Mohammed, F. S., Ali, S., & Mustafa, M. A. (2016). Quality of life of cerebral palsy patients and their caregivers: A cross sectional study in a rehabilitation center Khartoum-Sudan (2014 – 2015). Journal of Neurosciences in Rural Practice, 7(3), 355. https://doi.org/10.4103/0976-3147.182778

Park, S.K., Yang, D.J., Heo, J.W., Kim, J.H., Park, S.H., Uhm, Y.H. (2016). Study on the quality of life of children with cerebral palsy. The Journal of Physical Therapy Science, 28 (11): 3145-3148.

Ramadhani, A. N., Adriani, R. B., Salimo, H. (2018). Path Analysis on the Biopsychosocial Determinants of Quality of Life among Children with Cerebral Palsy. Journal of Maternal and Child Health, 3(4): 301-307.

Surender, S., Gowda, V., Sanjay, K., Basavaraja, G., Benakappa, N., & Benakappa, A. (2016). Caregiver-reported health-related quality of life of children with cerebral palsy and their families and its association with gross motor function: A South Indian study. Journal of Neurosciences in Rural Practice, 7(2), 223. https://doi.org/10.4103/0976-3147.178657

Tessier D.W., Hefner, J.L., Newmeyer, A. (2014). Factors Related to Psychosocial Quality of Life for Children With Cerebral Palsy. International Journal of Pediatris. http://dx.doi.org/10.1155/2014/204386

DOI: 10.23917/jk.v14i2.12861

Article Metrics

Abstract view(s): 898 time(s)
PDF (Bahasa Indonesia): 684 time(s)

Refbacks

  • There are currently no refbacks.